We moved to a more middle ground area between Matt's new job and my job at Yale New Haven Hospital which is also Lili's transplant hospital. Don't want to move too far just in case.
Wish we could update you from the last ultrasound in Jan. but even we have not been updated. The secretary called and pushed her appointment to March- no news is good news? We try our best to stay positive and keep mindful that Lili can be just like another child. But any BA parent knows, it only takes one microscopic bacteria or virus to travel into her liver and we become new tenants at YNHH and our old friend "Pixie" comes back.
To continue our mindful "normal" child thought process, we decided to have Lili join a Play Gym, in March, to interact with children around her age. That way we can be present and have her be the toddler she needs and deserves to be.
Wish we could update you from the last ultrasound in Jan. but even we have not been updated. The secretary called and pushed her appointment to March- no news is good news? We try our best to stay positive and keep mindful that Lili can be just like another child. But any BA parent knows, it only takes one microscopic bacteria or virus to travel into her liver and we become new tenants at YNHH and our old friend "Pixie" comes back.
To continue our mindful "normal" child thought process, we decided to have Lili join a Play Gym, in March, to interact with children around her age. That way we can be present and have her be the toddler she needs and deserves to be.